by Robin Dunn –
A Google search shows the definition of empower as: “to make (someone) stronger and more confident, especially in controlling their life and claiming their rights.” This sounds very appropriate; it’s what HeadWay does.
The best way I can explain this is to look back at what happened to me when I discovered I had Parkinson’s disease.
I’d developed an intermittent tremor in my right hand, and no matter how hard I tried, I couldn’t stop it. My family doctor, who had administered several tests, delivered the preliminary diagnosis: “Parkinson’s Disease. You will need to see a neurologist.”
Discovering that you have a progressive, lifelong disease with no cure can be a frightening prospect, and a depressing one. Even with a very supportive family around me, I felt alone. I was now “different;” not logical maybe, but that is how it seemed: I had lost any sense of control over my life.
At about the same time, I heard from a friend about the Victoria Epilepsy and Parkinson’s Centre (now known as HeadWay). As soon as I had my first meeting I realized I had help: HeadWay counselled me about this disease, and most importantly shared the knowledge to manage my symptoms. I was able to gradually take back control of my life; simply put, I was empowered.
I asked Mira Laurence, Executive Director of HeadWay, to share her perspective of their role: “Our purpose is to strengthen clients’ and families’ ability to manage the physical, psychological and social effects of Parkinson’s and epilepsy.”
Lynn Fanelli, HeadWay Health Fair Coordinator, told me that my story reflects her own experience. She said to me over coffee: “We are not prepared to handle the news of a debilitating diagnosis of poor health, whether it is the dying process of our parents, or illness with our children or with ourselves. I am not sure why we as humans do not instinctively have the ability to cope. With knowledge, we can and DO.”
I wholeheartedly agree with this: HeadWay’s family-inclusive approach was a critical part of both my and my wife’s learning how to live and thrive together regardless.
